Every little helps.
Even though not obvious or visible to many, I have a #chronicillness that makes getting around hard/challenging/unbearable sometimes.
Chronic pain and fatigue are part and parcel of #ehlersdanlossyndrome, so when @transportforlondon released a special badge for those with #invisibleillness to have an easier time asking for a seat on a busy train, I flirted with the idea of getting one. Just in case, you know.
It wasn't until this winter thoroughly kicked my arse that I took action. So here it is. Isn't it a beaut?! I don't know how people are going to react to it and if it ends up being an easier conversation or not. But one I've taken it for a test ride, I'll let you know.
Head to the TFL website and search for "Please offer me a seat" to find out more.
#eds #chronicpain #chronicfatigue #pots #potssyndrome #chronicfatiguesyndrome #tfl #everylittlehelps #notalldisabilitiesarevisible
As the nation’s headlines wonder aloud if January 2019 is to be the ❄️coldest❄️ on record, all I can think about is: “Am I going to have a #flareup?!”⠀
When my #EDS diagnosis was still new and my gob still freshly smacked, I was routinely blindsided by flare-ups. Often seemingly at random, I would feel the rug being pulled away from underneath me and be completely unprepared in dealing with the pain, the #chronicfatigue, and the darkness (hello, #mentalhealth!). Over time, I observed and took note of the (largely) non-medical ways that worked best for me to ease my #chronicpain, both physical and mental. I put together a list that you can plaster your walls with if it tickles you. Find the link to the downloadable #flarecarekit on growingupandlikingit.com.⠀
📢 What are your tips and tricks to get through a flare? I'd love to hear what helps, eases and relieves. ⠀