My chronic flare care kit

This post contains affiliate links. If you choose to click a link and purchase an item I link to, you don’t have to pay any extra money. I, however, receive a commission that will help me keep this site up and running. Please check out my disclaimer for more details. As the nation’s headlines wonder…

Confessions of an introvert mother

I’m writing this (reluctantly) on one of my many walks with Baby Lemons*. It’s on those walks when I seem to breathe more easily, walk taller and think clearer. Baby Lemons is – of course – asleep and although my knees are loose today, I keep walking to extend the precious period of “me” time;…

Pregnancy, childbirth, life with a baby and Ehlers-Danlos

May is Ehlers-Danlos-Syndrom (EDS) Awareness Month, a month to shine the spotlight on a frequently under-diagnosed multi-systemic condition of the connective tissue. May also happens to be around the time when we found out that I was expecting. EDS is a rare condition and sharing personal stories matters, so rather than just sharing a bit about my…

My hEDS birth plan

As part of my “hEDS x pregnancy” series of blog posts, I thought it might be helpful to share my birth plan or birth preferences. Lots of people warned us that nobody would even glance at it, but our experience was so very different. As I laboured through three different shifts, every single midwife and…

Low FODMAP explained

FODMAP is an acronym that stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. FODMAPs are simply a group of carbohydrates found in food, but some people, like me, can’t absorb all or some of them very well. If they are not absorbed, they become a food source for the bacteria living in our digestive track. That’s…

My journey to diagnosis & what’s next?

Hypermobile Ehlers-Danlos Syndrome (hEDS) In April 2015, I was diagnosed with Benign Joint Hypermobility Syndrome (HMS) by a hypermobility specialist, Dr Hanadi Kazkaz, at the University College London Hospitals with a score of 5 out of 9 on the Beighton Score. EDIT: Most recently, the assessment was revised by Dr Mittal at the Hypermobility Unit at…