My hEDS birth plan

As part of my “hEDS x pregnancy” series of blog posts, I thought it might be helpful to share my birth plan or birth preferences. Lots of people warned us that nobody would even glance at it, but our experience was so very different. As I laboured through three different shifts, every single midwife and […]


My journey to diagnosis & what’s next?

Hypermobile Ehlers-Danlos Syndrome (hEDS) In April 2015, I was diagnosed with Benign Joint Hypermobility Syndrome (HMS) by a hypermobility specialist, Dr Hanadi Kazkaz, at the University College London Hospitals with a score of 5 out of 9 on the Beighton Score. EDIT: Most recently, the assessment was revised by Dr Mittal at the Hypermobility Unit at […]